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Our Story

The Late Onset Tay-Sachs Research & Education Foundation was founded by Bonnie Pastor. Bonnie was inspired to create our foundation because at just 21 years old, her son, Eric was diagnosed. Her mission in creating this foundation was to educate doctors and the lay community in order to create awareness around the disease.
Read About Our Team

Collaborating for Progress

We Are Here For You.

Welcome to the Late-Onset Tay-Sachs (LOTS) Foundation, where compassion meets action. Our mission is to support individuals and families affected by this rare condition with understanding, resources, and hope. We believe in the power of community and the strength that comes from standing together. Whether you’re seeking information, looking for support, or ready to join the fight for a cure, we are here for you every step of the way. Together, we can make a meaningful difference in the lives of those touched by LOTS.

Be Realistic.

Late Onset Tay-Sachs is a progressive disease. Taking precautionary steps and making sure that you maintain your health and wellness is a top-priority. Exercise and diet are essential to maintaining a full and productive life. 

Learn About Available Therapies

Our Impact

The month of April has been declared National Tay-Sachs Awareness Month by California Governer Arnold Schwarzenegger

Meet The Board

Our dedicated board members are passionate advocates who bring a wealth of expertise, experience, and heart to our mission of supporting those affected by this rare disease.

Bonnie Pastor

Founder

Lynne Kuznetsky

President

Melanie Pastor

Vice-President

See Our Full Board

The information provided on this website is intended for educational purposes only and should not be construed as medical advice. While we aim to offer valuable suggestions for different types of therapy, it is crucial to consult with a qualified healthcare provider before making any decisions regarding your treatment plan. Only a licensed medical professional can provide advice, diagnosis, or treatment tailored to your specific condition and needs. Your healthcare provider will be able to guide you in choosing the most appropriate therapy options for your individual situation.

© All Rights Reserved 2024. Late Onset Tay Sachs Foundation.
Registered Charity: 818632911 RR0001